504 plans must be developed and implemented by public schools regarding students with disabilities. Students with disabilities requiring reasonable accommodations must have a written plan under Section 504; this is commonly referred to as a 504 plan. Each public school should have a person (guidance counselor, or social worker) who serves as the school’s “504 coordinator”. This person should coordinate the development, maintenance and the implementation of 504 plans.
Schools and Educators have a legal duty to identify students with disabilities. However, disabilities like lupus are not always obvious. With lupus usually it is the parents who will have to notify the school that their child has been diagnosed and has certain disabilities and needs that the school must look into under the Section 504 law.
When a case is referred, the 504 coordinator should call a meeting of the 504 team. The team should review the documentation provided regarding the concerns about the student. The team should then decide upon what plans need to go into effect.
Below is a sample of a 504 plan for a child with lupus in a High School. Most of the accommodations listed should be asked for by the parents and doctors of the child and should be sent to the 504 plan coordinator.
- Elevator pass
- Modified or no gym
- Special pass to leave class early to get to the next one if extra walking time is needed.
- An extra set of books to keep home so she does not have to carry them to and from school.
- Instant home tutoring if she is out for more than 5 days.
- She/He does not have to adhere to the school’s absence and lateness policy.
- She/He can wear a hat in class as well as gloves (because of her Raynauds) if she needs to.
- She/He can get extra time to finish homework, projects and catch up work.
- She/He can take tests at home, including Regents if it is necessary due to her health.
- She/He can have someone else copy notes for her including the teacher, or record the class on a micro-cassette recorder if her hands hurt too much from her arthritis to take the notes.
- She/He can skip work if she was too tired or sick to catch up and it is not held against her grades.
The sites below will give you detailed information on IEP and 504 plans for your child. Children with lupus qualify for both and IEP and/or a 504 plan to help them get the most out of their education despite their illness.