Lupus Patients with Renal Failure Using Anticoagulants or Antiepileptics at Risk of Osteoporosis

Systemic lupus erythematosus (SLE) patients with chronic renal failure who are using anticoagulants or antiepileptics are at higher risk for osteoporosis and fragility fractures, according to a study, “Risk factors for osteoporosis and fragility fractures in patients with systemic lupus erythematosus,” published in the journal Lupus Science & Medicine. Osteoporosis (OP) and fragility fractures (FFx) are a known… Read More »

Lupuzor May Become First Non-Immunosuppressant Therapy for Lupus

LupuzorTM may become the first specific and non-immunosuppressant therapy for lupus, a disabling autoimmune disease that is currently incurable. Discovered by Sylviane Muller’s team in the CNRS Immunopathologie et Chimie Thérapeutique laboratory, in Strasbourg, this peptide is the subject of a CNRS patent (granted in 2009) and has already successfully completed phases I and II… Read More »

Thank You Walkers!

Bright and early on Sunday morning our dedicated walkers came out in full force to help celebrate the 22nd Annual Walk-Along for Lupus!  Although the day was a chilly one, everyone arrived with smiles on their faces, ready to walk and donate to help those who live with lupus in Nassau, Suffolk and Queens. Rocky… Read More »

The Lupus Alliance of LIQ Celebrated the Launch of Ambalu Jewelers “Emerge From the Cocoon of Lupus” Jewelry Line.

On Thursday, September 17th Ambalu Jewelers hosted a complimentary cocktail reception to unveil the “Emerge from the Cocoon of Lupus” jewelry line, inspired by the Lupus Alliance of LIQ design contest. The LALIQ asked the public to send in their ideas for a design that embodied their mission, “Improving the lives of those living with… Read More »

One Facilitators Support Group Experience

Deeply defined by my own turbulent roller coaster-like relationship with lupus since 1991, I’d always considered myself a volunteer with the Lupus Alliance of Long Island/Queens. However, through the years, frequent flares, strange secondary complications, seemingly never-ending surgical scars and visible alterations of my once familiar body offered perfect justification to dwell behind-the-scenes in comfortable… Read More »

Lupus Initiative Launches Program to Develop Transformative Care Model For Underserved Demographics

The American College of Rheumatology’s (ACR) The Lupus Initiative (TLI) has awarded a one-year, $500,000 grant from the Office of Minority Health (OMH) to expand its established, national education program with development of an evidence-based program model aimed at improved health outcomes for people with lupus living in rural and underserved areas. The Lupus Initiative… Read More »

#LupusSelfie Challenge

What`s Up With the Butterfly? One of the visible signs of lupus is the malar rash – commonly referred to as a “butterfly rash” on both cheeks and across the nose. The butterfly has become a graphical representation of this autoimmune disease which affects 1.5 million Americans and 5 million people worldwide. The Challenge –… Read More »