There are three easy ways you can become involved in our activities: become a member, become a volunteer, or register to be a patient advocate.
Become a member
By becoming a member of the Lupus Alliance of Long Island/Queens, you will help increase public awareness, support lupus education, and fund research leading to new lupus treatments and, ultimately, a cure.
- Notices of all upcoming meetings and events through both mail and e-mail
- If you have children, or have a child with Lupus, membership automatically enrolls you in our Let Kids be Kids program
- Only members can apply for our Quality of Life financial assistance grant
- Only members can apply for our Maxine Manara Memorial Scholarship
- Members can enjoy free or discounted admission to symposiums, workshops and education days.
- Members enjoy access to our Complimentary Lupus Friend Program
If you would like to pay by check, Click Here to Download the Form.
For questions about membership, please click here to send us an E-mail.
Become a Volunteer
The gift of time can provide a meaningful experience for you while helping others. Volunteers are vital to the work of the Lupus Alliance of Long Island/Queens. Your valuable skills and fresh perspectives will make a difference for people living with lupus. Listed below are some of the ways that you might be interested in volunteering:
• Advocacy- Make your voice heard. There are many ways that you can help at the local, state and national level. You can register online to be an advocate or call the office and attend a meeting with other advocates in your area. Here are some things that we ask our advocates to do: Send e-mails or faxes to state and federal representatives (sample scripts will be provided); attend town hall and other meetings as needed to address health care issues that may relate to lupus patients; share your own personal lupus stories to help educate and build awareness; participate in local TV, radio or newspaper interviews to reach a wider audience.
• Walk-Along for Lupus/5K Run for Lupus– We are always in need of volunteers to do various things for our annual events, the Walk-Along for Lupus and the 5K Run for Lupus. From giving out brochures before the events, to helping us the day of there is something for everyone.
• Speakers Bureau- We train volunteers to speak at meetings of local organizations, associations and schools about lupus and the programs and services that our agency provides.
• Board Member- We’re looking for talented and conscientious volunteer board members to lead and strengthen our programs for people with lupus and their families. If you can contribute your time, thoughtfulness, contacts and leadership, please call the lupus office for an application, or if you have any further questions.
• Health Fairs- Volunteers will go to locations throughout our service areas to promote education and awareness about lupus. Community centers, healthcare facilities, local business associations, and churches often are the sites for health fairs and we provide the volunteers and material to be displayed. These events usually take place during business hours but sometimes are held on week-ends.
For questions on becoming a volunteer, please click here to send us an E-mail.
Become a Patient Advocate
Please register to be a Lupus Advocate. We need all the lupus patients and interested parties we can sign-up to help us advocate for improved state and federal heath care policies that will improve the lives of lupus patients and their families. It won’t take that much time and you will gain a great deal of satisfaction in supporting us all.
Some of the actions lupus advocates may be asked to take include:
- Sending letters, e-mails or faxes to their state and federal representatives (sample scripts will be provided)
- Attend town hall and other meetings as needed to address health care issues that may relate to lupus patients.
- Share your own personal lupus stories to help educate and build awareness.
- Participate in local TV, radio or newspaper interviews to reach a wider audience.