US Appropriations Committee Bill Includes $6 Million for Lupus Education and Research

By | June 28, 2016

A bill recently moved forward by the U.S. Senate Appropriations Committee on labor, health human services and education for 2017 includes $6 million for lupus research and education, in addition to $34 billion for medical research overall at the National Institutes of Health (NIH).

Specifically, the committee bill supports funding for the Office of Minority Health’s National Health Education Lupus Program initiative to develop a clinical trial education and implementation plan for new public, private and community partnerships; evaluations of current minority education programs; and the creation of new clinical trial education models.

Additionally, the bill supports a National Lupus Patient Registry Program plan to evaluate lupus related “burden of illness” issues that include patient quality of life,  and direct and indirect costs associated with the disease.

 The bill further calls for the Centers for Disease Control (CDC) to support lupus burden of illness studies.
Advocates from the LALIQ have been supporting this bill and requesting our legislators pass the bill during there many visits to Albany and Washington D.C. The Lupus Alliance of LIQ is thrilled to hear the bill has passed and thank all of their advocates, online and off for their dedication and support.

Leave a Reply

Your email address will not be published. Required fields are marked *