The Lupus Alliance of Long Island/Queens Hails a Huge Lupus Advocacy Victory With the Passing of the 21st Century Cures Act
Legislation will bring essential lupus education to the public and health professionals
The Lupus Alliance of Long Island/Queens, the only lupus agency located on Long Island that is dedicated to helping those who live with lupus in Nassau, Suffolk and Queens, announces a major advocacy victory with the U.S. House of Representatives passing the bipartisan House Amendment 392-39. 392-39 updated the 21st Century Cures Act, intended to spur the development of new medical treatments in many disease areas including lupus.
Over the past 8 years, the LALIQ volunteer advocates both in person and through email campaigns have worked hard to have their voice heard by our local representatives. Over these 8 years our advocates urged our officials to understand the need for better lupus education, awareness and diagnostic tests.
The LALIQ and all of those we serve and represent greatly appreciate that the Bill, with the Amendment, addresses specific requests that our lupus advocates voiced the need for. The Bill will:
- Streamlining and improving the FDA’s review of life-saving drugs for patients
- Modernizing clinical trials and removing regulatory uncertainty for the development of new medical apps
- Supporting and investing in the next generation of Scientists
- Provides $4.8 billion over 10 years to the National Institutes of Health
- $500 million to the Food and Drug Administration (FDA) over 10 years to move drugs and medical devices to patients more quickly
We thank the authors of this bill for perseverance in championing this important legislation: Fred Upton (R-MI), Diana DeGette (D-CO), Frank Pallone, Jr. (D-NJ), Joe Pitts (R-PA) and Gene Green (D-TX).